I just wanted to say that I am so sorry that your sweet little body has to go through so much. I wanted to tell you how VERY much I love you and that I hate having to give you injections of valium but I do it because I know that it will help the seizures stop. I want you to know that it means so much that all you want me to do is sing in your ear while you wait for the medication to kick in and your body to relax and give you relief. I want you to know how truly BRAVE I think you are. Oh, Bubba our long nights together are so hard but I know that no matter how difficult they might seem to me they are 100 times harder on you. I wish that I could take it all away. I wish that I could make your body treat you better. My heart breaks for you as I wipe away the tears while you are sleeping. I hate that you don’t get relief from the pain even in your sleep. Your road is a HARD and long one to walk but you will never ever have to walk it alone. When your body is too weak to walk… I will be there to carry you. I love you so much and I wish that Mommy’s kisses were just a little more powerful and could take your burdens away. I love you to Small World and back!!! Here’s to a better day tomorrow.
One Lucky Mommy