Tuesday, February 26, 2008

Whats going on in Presley house!

Today we took Great Grandma Jo to California Adventure. We went to some shows and had soup bowls for lunch. It was so much fun!

The Regan and Abbie started a Hip hop gymnastics class yesterday. They had a blast!!! Ballet is taking a break for a litttle bit... now they will be matching hip hop buddies!!!

Ok, so our week would never be complete with out a Collin crisis. Friday night Collin was crawling and feel and hit his mouth on our hard wood floors pushing his front two teeth up into his gums. It was very scary. I called my sister that is and ER nurse... didn't know what to do. Then I called a friend that is a dentist. He told me to call Collin's dentist's on call service. They called him in an atiboitic and we went into his office yesterday and things checked out good. His teeth are already coming down.

This is what happens when we are bored during the day and Collin is at school. Can you tell what her masks are??

Monday, February 18, 2008

Just venting..

I want to start this entry tonight with…. I am venting.. I am ok … just venting. I HATE Trichothiodystrophy! This awful beast that Collin has to live with and fight every day! I hate it! Collin is in pain 90 % of the time. He usually can handle it pretty well but some days are just to much for him. It is so heart breaking as a mother to see your baby in pain and not be able to do anything. TTD is such awful illness it effects every singe aspect of his life. He is blind, deaf, autistic, mentally and physically handicap, allergic to the sun, deficient immune system, and to date he has had ten surgeries. What is amazing about all of this is that most of this doesn’t even bother Collin. Most of this he can smile through and show how completely amazing he is. He is my hero!!!! Some day I hope that I can be half the person that he is today. Why do I even bring all of this up you might be asking??? Well, this was one of those weekends that was just so hard. Saturday Collin was in so much pain that when I hopped in the shower for a few minutes he dug his face into the carpet so much he tore his face up. He was in so much pain that he wanted to cause other pain to take his mind off of it. Cause a pain that he could handle.

Then today he woke up in so much pain that he lashed out at me and busted my lip open. The only reason that I am bringing this up is because for all of you that see me and I have to explain.. I want you to know that Collin is very good boy. He does not lash out to be mean. He lashes out because he doesn’t know what else to do. He is in so much pain and I am mommy I should be able to fix it and when I can’t I know it frustrates him. He doesn’t do it to anyone else, that is a very good thing. At my breaking point I thought that I would think of the good things during these hard times and these are some of the things that I have come up with…..

Collin LOVES his baby Tad. It conforts him!

I am grateful for amazing doctors and medication that help Collin. We have been blessed with the best of the best.

Collin LOVES pictures!!! They comfort him and he loves to look at pictures that Uncle Ray took of Disney Light parade that I put in these sheet protecters.

Regan asked me what I was taking pictures of and I told her. She ran out of the room and came back with her big lolly pop and said that it made her happy when Bubba doesn't feel well. (It is so hard on her as well.)

These are beautiful flowers that my next door neighbor brings me. He has the most amazing garden, it is what I would picture the book the secret garden to be like. He brings them to me and I can't help but smile when I see them and know that someone thought of me.

As crazy as it sounds I am grateful for every bit of this. I know that my little boy is so very special. He is so special that he had to be placed in the sweet body that he has to be protected from Satan’s grasp. I can’t even begin to imagine what a righteous spirit he has. What an amazing day it will be to see him in full glory in Heaven some day. How could I not be grateful to protect and take care of such a PERFECT little boy.

Thursday, February 14, 2008

Valentine Fun!!!

First off Happy Valentines Day to my wonderful Husband that I love so much!!! You truly are my best friend and I don't know what I would do with out you!!! Our days are crazy and hard but with you by my side it is amazing!!! I love you!!!

We had a blast making Valentine cupcakes!! We gave them to family and everyone loved it!! The kids love to bake. Collin was so funny. I turned my back for just a second and he picked up an egg and threw it at me!!! (look at the last picture with the egg on the floor.) It was so funny! What seven year old wouldn't love to throw an egg at his mom. Collin laughed his I am up to something laugh and had a huge smile on his face!!

Collin's old school, Madison, invited Collin to come to back today for a good bye party!!! The regular Ed. classes were VERY upset that they did not get to say good bye to him. It was so sweet. They had the cutest cake, balloon, and LOTS of love!! Of course they did Valentine exchange! It was so much fun. It is so great to know that my child is SOOOO loved!!!

Aren't Grandparents the best!!!

My mom came this past weekend to spend some time with us and we LOVED it!! Regan was so excited to have a sleep over in her room. She planned out the entire weekend.... a trip to her favorite resturant.. Denny's (Yes, she is a cheap date!)... a trip to her favorite store Target. Poppie (my mom) came to church with us and saw Regan being the reverance child for the very first time. They made crafts together, bed time stories, and cuddles, and a trip to Disney land!! What a great weekend!!

And of course we went to Disney Land and had a blast!!! We went to breakfast at a character resturant. Collin got lots of attention and they made sure to give Regan love too!! It was a fun morning!! Thanks mom we had a blast with you this weekend!!

Thursday, February 7, 2008

Regan's V-Day party!

Regan had her annual V-day party today! It was lots of fun!!! Thanks everyone for coming and helping us have a blast!!!

Lauren wanted to get her picture just right!!!

Forget the cupcake Brook went right for the icing!

Eli was the only boy and choose to stay away from all of the crazy girls!

Jason's little sister and Baby Andera! Andrea's very first V-day bash! vcxz
Belen and Regan enjoying their Valentines that they got from their friends!!!

Random Ramblings.....

Well, there has been a ton going on in the Presley house! After having to get a lawyer I took on the L.B. School distict to get Collin a change of schools. Collin is now attending Tucker!!! Yup... I won!! wink! That has been a huge change and a lot of getting used to. I also came down with brochitic (sp??) and the flu... yes, lots of fun! wink! Thank you to everyone that helped us!!! Anyways we have had some high lights over the past couple of weeks for starters I went to the Garth Brooks concert!!!! YES YOU READ it right!!!! I went with Bishop and Vicky. What a blast!!!

Garth and Trisha singing!!!

I got an early morning 1:30am wake up call letting me know that my dad was in the hospital with what they believed to be a heart attack.What a SCARY and AWFUL feeling to get!! He is doing great now!! The kids had a blast making get better cards!!

My amazing sister made these beautiful quilts for Collin and Regan and I kee p meaning to put them up!! She is so talented!! She been quilting since High School!!! THANK YOU AUNT NANCY!!! We love you!

All in all we are doing good around here.... just a little crazy ... but that isn't anything new for us!!!