We serisously need to find a cure {or treatment} for children with Trichothiodystrophy and or Mitochondrial disease.....
because no sister should have to go to a grave to talk to her brother.
{Today was hard.}
3 comments:
Susan
said...
Thoughts and prayers are with all three of you on each and every hard day. I'm praying you'll feel Bubba's presence surrounding you every place you are. You shouldn't have had to lose him. There are still too many diseases we don't know enough about and it's heartbreaking.
I repeat my request that you write a book about the experiences you write on your blog. You could call it "I Can Do Hard Things" Your faith, optimism, hard work and love need to be shared with the world. I love you and your very sweet family.
You are so inspiring. I don't even know you personally and I know that you are totally awesome! And that little girl of yours! SO strong. My heart is broken for your family! <3
3 comments:
Thoughts and prayers are with all three of you on each and every hard day. I'm praying you'll feel Bubba's presence surrounding you every place you are. You shouldn't have had to lose him. There are still too many diseases we don't know enough about and it's heartbreaking.
I repeat my request that you write a book about the experiences you write on your blog. You could call it "I Can Do Hard Things" Your faith, optimism, hard work and love need to be shared with the world. I love you and your very sweet family.
You are so inspiring. I don't even know you personally and I know that you are totally awesome! And that little girl of yours! SO strong. My heart is broken for your family! <3
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