Feeling blessed beyond meausure............

What a difference a day makes. Bubba's body gave him some much needed relief today and was seizure free!!!!!! What a HUGE blessing this was for him. We are hoping that ALL of the new medications did the trick and this will not be happening again any time soon. I am so blessed to be married to a worthy man that is able to give our son blessings at times like this. I am blessed that despite hard days and nights we were able to see small glimpses of Bubba's smile. Tonight while Jason was saying our family prayer he voiced my gratitude so clearly.... our health insurance that provides these services for Bubba, modern technology and medication, the power of prayer and all of the many people that joined us in prayer for our little boy.... and the list goes on. Now, I wish that I could say that Bubba had a wonderful day today but that was not the case. Bubba has been having some issues with his g-tube site for a little bit, we have been using topical medications to try to resolve it. This morning I could tell that it was bothering him, to my horror when I looked it was bloody. At some point in the night the blister had burst and irate the granuloma. I changed the gauze and with in no time the new one was covered in blood. I had to take him into the hospital. They had to cauterize the area around the g-tube site to try to stop the bleeding. It took multiple treatment and a lot of tears. We are praying that the treatment and new medications will be just what he needs and prevent any infection. While I was at the hospital Jason sent me a text "you have the best friends... you have a surprise waiting for you when you get home." When Bubba and I finally got home there was a package from my sweet friend. It was the perfect pick me up.... diet coke, some of my favorite candy, a reusable cup that I had been wanting and a supportive card. I checked my phone to find messages from several friends "what can I do... are you OK.... do you need help with Regan?" Then my Mom called me and told me that her and my little sister wanted to buy plane tickets to come out here. My sweet in laws kept checking in and offering to cut their trip short {which I would NEVER let them do}. My family kept checking in and were such a HUGE support. You, my sweet friends, have left such kind messages and offered prayers of Bubba's behalf. How in the world can I not feel blessed!?!?!?!?! I mean seriously I could not ask for a better support system.... Thank you!!!!! Today was another hard one BUT Bubba is doing better and asleep in his bed. I am praying that with another full day of rest we might be able to give him the best medication we can on Friday... Yes, you’ve got it Disney! wink!!!

Grateful for all of the new medications..........

A wonderful team of doctors that get us in right away to help his tummy.......... 

and the little glimpses of his sweet smile!