Tuesday, May 10, 2011

No cute title tonight...........

I just can't come up with one.


You know something I have learned over the years is that during some our darkest moments we receive the greatest gifts of sunshine. Today was another HARD day for Bubba. He seemed fine when he woke up this morning. I took him to school and then headed off to school myself. I needed to turn in my finals for the last week of school. Bubba's teacher knew that I was going to school so when I saw him calling I knew it was important. He then told me that Bubba was having seizures. I left school and headed back to Bubba, on the way I was on the phone with his neurologist. They told me that he was having "cluster seizures" and that I needed to give him valium again to try to stop them. {this is his 4th straight day of bad seizures.} When I got to Bubba's class I was still trying to process it all..... "Ok, I need to give him the valium... what am I going to do with Regan...{Jason's parents are out of town and Jason was at work}.. I guess I will just get her now." Bubba's wonderful Ms. Sherril could tell that I was stressed and then told me not to worry about Regan, she would bring her home for me. This was such a HUGE ray of "sunshine" in my very dark day. I can't even begin to tell you how much this gesture of kindness meant to me. We got home and Bubba continued to seize, the doctor order yet another medication for him. {if you are counting that makes 4 seizure meds now} Jason came home from work because he was to worried to stay. They are worried that something is going on in sweet little Bubba's brain that is triggering this new and hard form of seizures. To say that we are scared would be an understatement. Tonight another ray of sunshine came in the form of a friend that came to help Jason give Bubba a blessing. Another ray of sunshine in these hard days are you my friends. So, this is where I need you. Please pray for my little boy, pray for his body to get the rest it needs to recover and that when he comes out of this there will not be any long term damage. My last and final ray of sunshine today is the love and support that I feel from my Heavenly Father even in the hardest of moments, I am never alone.

10 comments:

The Huss Family said...

Poor little guy. We will keep him and all of you in our prayers.

My Blog said...

Praying hard for your little man.

Kristi said...

Julie, I'm so sorry. I think of him all the time, and I will definitely keep him in my prayers...you too!

Rachel said...

Julie - I am praying. Knowing that God knows exactly what is happening in your boy's body. And knowing that He loves him - unbelievably - and nearly impossibly more than you.

Asking Him to hold Bubba. Through these seizures, medications, decisions, treatments, and recovery.

Asking Him to give Bubba and you sweet rest tonight. And praying that He would minister to you. Refresh you. Encourage you and continue to bring those rays of sunshine into every day.

Foursons said...

Praying hard.

Rochelleht said...

SO praying. Praying hard!!!

Seizures suck.

No other way to put it.

Skeller said...

praying, praying, praying ...

Katie said...

Bubba is always in our prayers. Will call you today. xoxo

Sue said...

Call us if you need us. Remember, Gordon is retired and if there is a need, call.

sandi said...

Sending love and prayers your way! You are remarkable!