Tuesday, July 16, 2013

Summer bucket list..........

Oh my heavens y'all!!!

It has been a MONTH since I last posted!!!!!

Things have been crazy around here and I have been slacking on the blog.

Sorry.

I am so behind and don't even know where to begin.....

seriously y'all this is BAD!!!

{It will take several posts to catch up so let's start with the fun stuff.}

At the beginning of Summer each year we make a summer bucket list.

This years bucket list......

we are only 5 weeks into summer and we are checking things off left and right.....

Disneyland {check}
We have an amazing and talented friend that is in the Aladdin show at Disneyland and hooked us up with VIP tickets and backstage passes!!! {WHAT!?!?!}



 Science Museum {check}


 

Beach {check}
We are at the beach ALL of the time so that one is EASY ;)


 

Movie Days {check}
 


See Monster's University {check}
We took the train into Hollywood..... 
and watched the movie at El Capitan theatre. ;) 
Hubs met us there after work.....
and was nice enough to give us a ride home ;) 
Make S'mores {check}
 
Met up with some amazing friends at the beach and got our bonfire on!!! ;)


sleep over/ funky junky night {check}
Slip n slide {check}
fire station tour {check}
 


Book club {check}


So, as you can see we have been BUSY and will keep up this pace all summer.
 
What's my bucket list you ask????.....
 
These two are my bucket list ;)

Wednesday, June 19, 2013

{Even nine year old girls can be an answer to prayer.}

In all of the fun of moving we had a garage sale and Regan wanted to have a Lemonade Stand.

I told her that this was a great idea and then we started talking about why she wanted to have a Lemonade Stand....

I want.....
I need.....
I want......

At this point in our conversation I stopped her and reminded her of all  that she had... of all that she was already getting rid of at the garage sale because she had to much....  and then asked her if she really NEEDED or WANTED those things still.

At this point we decided that it would be a good idea to have the Lemonade Stand to raise money for something or someone that truly NEEDED the money.

Regan decided that she wanted to raise money for Sofi.
Our friends are adopting this sweet little girl, Sofi, from Bulgaria later this year. Just like one of her five big brothers she was born with Spina Bifida. The adoption process to bring sweet Sofi home is very expensive and Sofi's wonderful family has done a ton of fundraising to get the money to BRING her HOME! Regan felt inspired to use her Lemonade Stand to help bring Sofi Home!
 
Oh that sweet girl of mine has a heart of gold.
 
  We had lots of friends and family stop by to support Regan and her efforts to raise money for Sofi.

Three of Sofi's big brothers stopped by to get some awesome lemonade. ;)
 
At the end of the day Regan managed to raise $50 for Sofi's adoption with her Lemonade Stand. When my Mom found out about what Regan was doing she told her that she would double what ever she made... making her grand total $100!
 
Regan was excited about raising $100 and then asked me how much it would cost to bring Sofi home. She was discouraged when I told her how much money was needed. She then responded with "well... my 100 bucks wont do much will it??"  I assured her that every bit of money that went to Sofi's adoption was important.
 
Monday we were finally able to connect with Sofi's Mommy and give her the money that Regan raised.
I was moved to tears as I listened to our sweet friend explain to Regan that she was an answer to her prayers. She told her that it was pay day soon and that they didn't have much money.... that there was a VERY important letter that she needed to get filed for Sofi's adoption and that she didn't have the money for. This letter would cost her $100. Regan's donation was exactly what she needed to file this important paper work and keep the process of bringing Sofi home moving forward.
 
I don't think Regan truly understands what a blessing she was on this day to sweet Sofi but I am hoping that one day she will realize what a special experience this truly was. I am grateful for my sweet girl's giving heart and for the gentle reminder that we can all be tools in God's hands as he uses us to answer the prayers of those around us.

Tuesday, June 18, 2013

Team Bubba Toy Drive

On July 4th we would be celebrating our sweet Bubba's 13th birthday. It will be our first year of not having him to celebrate with us here on earth. It is going to be hard. We want to do something special in his name. So, Team Bubba is holding a toy drive to honor our American Hero, Bubba, starting tomorrow June 17, 2013 until July 4, 2013. All of the toys collected in the toy drive will be donated to Bubba's hospital, Miller Children's Hospital in Long Beach Ca. I will have a box on our front porch that you can drop off new unwrapped toys in. If you would like to mail gift cards I have a sweet little girl that will happily do the toy shopping for you. Please message me for our address if you do not have it or for further information about the first annual Team Bubba Toy Drive.  picsbypresley@aol.com
{Don't forget we have moved!!! ;}

  "By doing small acts of kindness we can do great things!"

Also if you want some ideas about what would be good to donate please follow this LINK. The wonderful people from child life give you wonderful ideas. Thank you so much!!!!
GOOOOOOOOOOOOOOOOOOOO Team Bubba!!!!!

Sunday, June 16, 2013

Dear Daddy....


Dear Daddy,

It is your first Father’s Day without me and I know it will be hard. I have watched your cry so many times and want to remind you Daddy that it is because of you, my best buddy, that I had such a fun life. You and Mommy were told that I would most likely not make it to my first birthday and not to hold out much hope for my future, that I would be a vegetable. You and Mommy chose hope. You chose me! Thank you Daddy! I saw a lot of my sick friends who didn’t have Daddy’s… it was too hard for them and they hit the road… not my Daddy. Thank you Daddy! You helped me break the limits of my body by throwing me down the slip n slide, holding me in your arms in the bounce house, pushing my wheel chair fast so I could feel like I was running, carried me on your shoulders so that I could feel tall, held my hand at the doctors, took me swimming, sang to me, prayed for me… oh yes Daddy, I heard your prayers at night while you held me in your arms, took me on father son camp outs even though I know it was a lot of work for you, wiped away my tears when it hurt so bad, took me ice skating and let me watch the Zamboni over and over again, let me play call of duty with you and mess up your games, you took me on roller coasters when Mommy was to scared, you rocked me to sleep at night even when I was a twelve year old boy, you turned my walker into a hot air balloon for Halloween… who does that!?!?!... My Daddy! You came to my school and cheered for me at my fifth grade graduation like I had really accomplished something, you took me to ride the city bus, you held me up high so that I could reach the monkey bars, you would break me out of my room at the hospital and let me ride the elevators up and down, you changed my diapers and fed me for twelve years Daddy…. That it is love.

I know that today will be hard and you will miss me so much. So I got a little help from Mommy to remind you that you never wasted a single second with me. You are the best Daddy there has ever been…. I knew that when I picked you! I miss you too Daddy and can’t wait to tell you with words for the very first time how much I love you! I can’t wait to run into your arms! I have put in a good word for you here in Heaven Daddy and there is only one place that is good enough for a Dad like you… and that is right next to me.

Happy Father’s Day to the best Daddy that a little buddy has ever had!!

I love you Daddy!

Love,

Bubba

Friday, May 31, 2013

{God's timing}


It is amazing how in retrospect I can see that God truly has me in the palm of his hand and is very aware of me and our family’s needs. God’s timing might not always make since in the moment and at times might seem unfair. Come on y’all….. I think I get that one BUT when we stop and take a breath and look…. truly look at our lives we can see how much God loves us and is aware of us.

I have had SOOO many of these moments over the past 10 months.

Hubs interviewed for a job over two years ago and in the process of the final stages he was informed that after two years our family would be relocated to anywhere in the country that the company needed him. We talked about it…. Prayed about it…. Worried ….. Bubba’s medical team was all here and the care that he received here in So. Cal was top notch. The thought of picking up and relocating to who knows where and not having the care for Bubba was terrifying. We weren’t sure if we would be able to do that.

Then Hubs got a call to let him know that the company had gone on a hiring freeze.

As Bubba’s health continued to decline Hubs and I decided to put the job search on hold. We knew we couldn’t change insurance companies with everything that his care was already costing us.

Then the unthinkable happened.

Not only did we lose our son but we also lost my income. I was getting paid to care for Bubba since we didn’t want to put him in an institution for his care and because we had no outside nursing come into help.

In November Hubs and I sat down and had a real heart to heart over the situation…. Either I would have to get a job or he would have to start looking for a new one. The last thing either of us wanted was for me to have to go to work full time and be away from Regan when she needed me most.

The very same week that we had this hard talk the company that Hubs had interviewed with over a year prier called him and asked if he was still interested in working for them. He went in to interview with them again and the same stipulation still applied to the job…. In two years you will be relocated to anywhere in the country that you are needed….
 Are you OK with that???

The conversation about relocating was completely different this time around.

During this time Nana and Pa Pa decided to go on a mission trip for The Church of Jesus Christ of Latter Day Saints and asked us if we would be willing to live in their home while they were gone for two years and care for it.

{Ok y’all are you starting to see the timing of all of these things come together????}

Hubs started working for his new company a couple of months ago…. We moved into Nana and Pa Pa’s home this past weekend…. And they will be leaving in a matter of weeks for their mission in Panama.

 When Nana and Pa Pa return it will be right around the time of Hub’s relocation.
 
We will have no mortgage or rental commitments to worry about.
 
We will be able to pick up and go where ever we are sent.

It is exciting and a little scary when we think about it but it will be a new and wonderful chapter in our lives.

I have no doubt that we will end up where God wants us to be.  Some people might say that all of these things are simply a matter of coincidence but I know that it is God’s timing.
Ecclesiastes 3:1,2,4
1 To every thing there is a season, and a time to every purpose under the heaven:
 2 A time to be born, and a time to die; a time to plant, and a time to pluck up that which is planted;
 
4 A time to weep, and a time to laugh; a time to mourn, and a time to dance.

There are things in our lives that we have no control over and things that we can control..... Oh, have I learned that lesson over the past ten months!!  I do have control over my faith and I truly believe in God's timing. I am grateful to know that I have a Heavenly Father that loves me so much that he will time things perfectly for our needs, even if in the moment it doesn’t make since.

Here's to a beautifully scary new season for our family.


Monday, May 27, 2013

There is a reason I have been MIA......


This weekend we said good bye to our tiny cozy home and are moving on.

There are so many emotions that this move has unearthed.

There were tubes... socks.... pieces of Bubba every where.

I wouldn't let anyone help me pack....

nope not one despite their sweet pleas to help me. ;)

I needed to do it myself ......

because of my daily break downs as I did it.

It was just too personal to share with anyone.

I was cut open and left raw for weeks as I went through his things....

as I prepared to say good bye to our home.

This sweet little home holds some of the best memories

and also the very worst of memories.

I know that where ever I am my sweet Bubba is with me.

I don't need the security of those walls to hold onto the memories that we created there.

Here is to new beginnings with our sweet Angel watching over us as we go.

Thursday, May 9, 2013

{Team Bubba}

9 months ago today my world changed forever.

9 months ago today my heart broke.

9 months ago today I wasn't sure how or if I could go on.

13 days ago my world changed for the better.

13 days ago another bandaid was placed on my broken heart by complete strangers.

13 days ago I was reminded that I can go on.... that I WILL go on.... I CAN do hard things....

That I have a legacy to share.

My sweet, sweet boy was honored by our local chapter of Ability First at their annual stroll and roll 5k.

{This is where Bubba enjoyed summer camp each year.}

The 5K was at the Universal Studios back lot. {super fun!}

Team Bubba wore bow ties in honor of Bubba.

I was in tears before I even got out of the car......

Cars were passing us by and I could see the people... people I have never even met wearing bow ties.

The show of love and support for our boy was overwhelming.
It was a beautifully hard day.
Lots and LOTS of tears.
Nana and Pa Pa came to support their boy. ;)
The love was so overwhelming.....
I didn't even manage to get a picture of everyone wearing bow ties. 
 
{Regan's friends came to support her.... tears}

 
{my sweet friends came to support me..... tears....
oh, they would help me pull it back to together every time I lost it.} 
 
 
 
 
 
It was so sweet to see Bubba's friend supporting him!
 
 
 
 
 
 
 

To put is simply..... it was AMAZING to see how many people love my boy.
{Tears} 
and Bubba crossed the finish line with us!
We did it!!!
We CAN do hard things!

We are so grateful to everyone that came to be part of Team Bubba and support Ability First.
Thank you so much!!!
By doing small acts of kindness we CAN do GREAT things!!!