tag:blogger.com,1999:blog-5867944808798447676.post6282088155887784946..comments2023-11-13T00:58:18.253-08:00Comments on Presley Fam: What would you miss?Presley familyhttp://www.blogger.com/profile/05906362945920064243noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-5867944808798447676.post-64445887553761513022009-06-02T22:23:18.330-07:002009-06-02T22:23:18.330-07:00How neat, to come across your blog. First of all,...How neat, to come across your blog. First of all, to answer your question, I have a Canon 40D and a Rebel XT (I have only had the 40D for a few months though). The most recent image of my daughter on my blog, was taken with my old Rebel XT that I have had for YEARS!!! You have some beautiful pictures yourself. And furthermore, I am very touched to read about your trials and joys with your family. And to answer your question, what would you do???? I would do what you do. I would set up a shade canopy at the beach, find the most beautiful park filled with hundreds of shade trees. I would continue to live my life and enjoy the beautiful world we've been given, with the best precautions possible! Sounds like you are doing an awesome job to me.Erin Thompsonhttps://www.blogger.com/profile/10516845548489232045noreply@blogger.comtag:blogger.com,1999:blog-5867944808798447676.post-10936625541731912812009-06-01T14:03:28.339-07:002009-06-01T14:03:28.339-07:00You are such a strong person! I was just getting ...You are such a strong person! I was just getting caught up on your blog and wanted to say CONGRATS to Jason for graduating college. That is a tremendous accomplishment especially given all that you and your family have been through. Keep it up, it's all worth it in the end:)Mariehttps://www.blogger.com/profile/11158929334291004704noreply@blogger.comtag:blogger.com,1999:blog-5867944808798447676.post-52958098547910371382009-05-31T12:23:49.610-07:002009-05-31T12:23:49.610-07:00I'm so sorry that you and your family have to deal...I'm so sorry that you and your family have to deal with the limits the TTD has placed on Collin. I can't imagine how terrible it must be to always have to hide from the sun, just to keep your child from being in pain or from having seizures. We experience just a taste of that since Lily has temp. regulation problems that affect her when the temps get to a certain point here in Texas. We're looking into a cooling vest because it makes me sad to think that now that she is finally wanting to play on the playground at school with other kids, her aide has to stop her every 10 minutes to check her temp and have her sit in the shade for a while drinking cold water to cool down. I know we only have a small, small idea of what Collin has to deal with, but I can sure sympathize with the limits it places on you all. Collin is very blessed to have such loving parents and a sister who always have his best interest in mind, no matter how inconvenient it is for your family. Give Collin and Regan a big hug from us!Amyhttps://www.blogger.com/profile/03061245671779534093noreply@blogger.com